"PH makes me feel depressed about the things I used to be able to do. So many health professionals don't know about the disease so how can we expect the general public to?"
Pulmonary hypertension, PH for short, is a rare, life limiting condition that causes high blood pressure in the blood vessels connecting the heart and the lungs (the pulmonary arteries). More
MPs representing constituents from across the country joined us to find out more about pulmonary hypertension at Westminster this week. Our ‘fly-in day’ at Portcullis House on Monday saw 15 MPs (or their representatives) meet with members of the PHA UK team to sign pledges to support people living with PH.
PRESS RELEASE: A group that represents people living with the rare disease pulmonary hypertension has branded an NHS England decision to reject a new drug that could improve quality of life ‘exceptionally unjust and grossly unfair’. The Pulmonary Hypertension Association (PHA UK) has been campaigning hard for Selexipag to be available in England, following positive […]