Assessing the real financial impact of PH

A survey to discover the real financial impact of pulmonary hypertension has been launched by the PHA UK, to help meet the aims of PHocus2021.

Financial difficulties caused by PH seem to be getting worse. Last year, 63 per cent of those who responded to our Living with PH survey said that financial worries had an impact on their lives, and the same number said their condition affects their ability to attend work or education.

We want to build on these findings to find out which elements of people’s financial stability are affected the most, and to understand the impact it has on their lives.

Iain Armstrong, Chair of the PHA UK, said: “It’s vital that people don’t face financial difficulties because of pulmonary hypertension, and to affect change we need to understand more.

“We’re determined to make life better for people with PH. The physical and emotional symptoms of the disease are bad enough, without the additional pressures of a reduction in income, difficulties accessing benefits, or the extra expenses of travelling to medical appointments.

“We’re calling on as many people affected by PH as possible to take part in this survey as without a ‘big voice’ it’s difficult to push for change.”

As well as the financial impact survey, a number of qualitative interviews are taking place to provide the widest possible picture of how PH affects people’s finances.

The deadline for completed surveys is 22nd December. Analysis will take part in the New Year and the results will be released in early 2018.

If you are affected by pulmonary hypertension and would like to take part in the survey, please call 01709 761450 or email office@phauk.org.