Author Archives: Mary Ferguson

• 01/02/19 The power of the patient voice
• 22/12/18 Patient group welcomes decision to fund new rare disease drug in England
• 27/11/18 MPs pledge their support for people with PH
• 07/07/18 “Exceptionally unjust and grossly unfair”
• 19/06/18 Patient voice secures ‘yes’ for new PH drug in Wales
• 07/05/18 Victory in the campaign for selexipag
• 08/03/18 Local MP lends support to PHocus2021
• 05/01/18 Making patient voices heard in the debate around Selexipag
• 13/12/17 Assessing the real financial impact of PH
• 15/11/17 Awareness week aims to put rare disease in the spotlight