Local MP lends support to PHocus2021
The PHA UK has gained the support of its local MP to help drive change for people living with pulmonary hypertension.
The charity welcomed Angela Smith, MP for Penistone and Stocksbridge, to its resource centre in Sheffield in February.
The aim of the visit was to discuss the work of the PHA UK and to raise awareness of PH, which affects just 7,000 out of 64 million people in the UK.
Angela Smith MP said: “I could see straight away during my visit that the PHA UK puts patients and their families at its heart. I was particularly moved by a short film of a patient who shared her experience of living with the disease. I was also able to meet her during the session and talk at length about the issues she faces on a daily basis.”
During the meeting, Professor David Kiely, respiratory physician at the Sheffield Pulmonary Vascular Disease Unit at the Royal Hallamshire Hospital, highlighted the nine specialist PH centres across the UK.
Angela continued: “It’s really positive to hear that the Royal Hallamshire Hospital in Sheffield is a centre of excellence in PH treatment – providing the very best care to patients not just in our city, but as far as Manchester and Cumbria.
“As a rare disease charity, I believe it’s important for PHA UK to work with others in the rare disease sector and to be a beacon of hope for patients. The charity has already made great strides in its campaign to drive public policy change and I’m very pleased to be able to provide support to the charity in any way I can.”
Iain Armstrong, chair of PHA UK, said: “We know that everyday life can be very challenging for people with pulmonary hypertension but not many people are aware of the disease. We hope that by engaging in discussion with our local MP, and lobbying in Westminster through our PHocus2021 programme, we can help to dramatically improve the circumstances for people living with PH. Our aim is to make significant progress by the year 2021.”
Image shows from right to left: Shaun Clayton and Iain Armstrong from the PHA UK, Angela Smith MP, patient Julie Royle and her partner Kevin Rowland, and Professor David Kiely.