Patient Voices #BreathlessNotVoiceless

Kaylee Mynot

“I get annoyed that I can’t do everything my friends can do”

 
Kaylee Mynot, 17, lives in Wallington in Surrey and was diagnosed with pulmonary hypertension as a baby. She is treated at Great Ormond Street Children’s Hospital in London.

“I get out of breath easily so at school I don’t do PE, and I get tired quite easily too. I also have to use an oxygen machine at night.

I get annoyed that I can’t do everything my friends can do. I used to be called ‘the slow coach’ at school, and be called names by people who didn’t understand.

At times I do wonder ‘why me’? Out of everyone, why did pulmonary hypertension pick me? But I’m happy, because I have the most incredible family, so many friends who support me, I’m under the care of the best hospital, and I take life as it comes.”

Kaylee’s mother, Kaye Russell, said:

“It was a long route to Kaylee’s diagnosis when she was 11 months old. There was so much to take in. We were told she wouldn’t live to be five, and we should go home and enjoy her. That was really hard.

“I do worry about her future. I want her to live a full life and achieve what she wants to achieve. Having a child with PH is worrying and sometimes life does look uncertain. But there is help, although it’s hard to seek it sometimes. Kaylee helps make me strong. She is very positive and that helps us as parents as well.”