Hear our

Listen to the reality of life with PH, revealed in the UK's biggest ever survey into the lived experience of pulmonary hypertension.

The PH community
has spoken...

The results of the biggest ever study into what it means to live with pulmonary hypertension are here.

Breathless, not voiceless.
It's time to turn up the volume for PH patients.

Breathless not voiceless...

"PH makes me feel depressed about the things I used to be able to do. So many health professionals don't know about the disease so how can we expect the general public to?"

Putting a political PHocus
on pulmonary hypertension

Our 4 aims for positive change…

Pulmonary hypertension, PH for short, is a rare, life limiting condition that causes high blood pressure in the blood vessels connecting the heart and the lungs (the pulmonary arteries). More


Reducing the time to diagnosis for pulmonary hypertension.


Improving the health, wellbeing and quality of life of patients with PH and their kinship.


Ensure equity of access in the UK to evidence-based PH treatments for all.


Reduce the financial hardship incurred by living with PH.

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