Pulmonary hypertension, PH for short, is a rare, life limiting condition that causes high blood pressure in the blood vessels connecting the heart and the lungs (the pulmonary arteries). More
Reducing the time to diagnosis for pulmonary hypertension.
Improve the health, wellbeing and quality of life of patients with PH and their kinship.
Ensure equity of access in the UK, via specialist centres, to evidence-based care for all.
Reduce the burden of PH.
PRESS RELEASE: People living with the rare lung disease pulmonary hypertension experience high levels of isolation and anxiety and lowered self-confidence, according to new research.
PRESS RELEASE: People living with the rare disease Pulmonary Hypertension are suffering financial distress and an unfair battle for benefits, according to new research.
Just before Christmas, Selexipag was approved for patients in England – and the patient voice made a big difference in securing success.
Patient voices have helped secure the approval of a new drug designed to improve the lives of people affected by a rare, life-limiting disease in England.