PRESS RELEASE: People living with the rare lung disease pulmonary hypertension experience high levels of isolation and anxiety and lowered self-confidence, according to new research.
PRESS RELEASE: People living with the rare disease Pulmonary Hypertension are suffering financial distress and an unfair battle for benefits, according to new research.
Just before Christmas, Selexipag was approved for patients in England – and the patient voice made a big difference in securing success.
Patient voices have helped secure the approval of a new drug designed to improve the lives of people affected by a rare, life-limiting disease in England.
MPs representing constituents from across the country joined us to find out more about pulmonary hypertension at Westminster this week.
PRESS RELEASE: NHS England decision to reject new drug ‘exceptionally unjust and grossly unfair’.