People diagnosed with pulmonary hypertension experience a significant reduction in their quality of life, research from the Pulmonary Hypertension Association (PHA UK) has found.
Pulmonary hypertension patients have taken to Facebook to share the ways in which the condition affects their finances.
Our open letter criticising the decision not to fund a new treatment for Scottish PAH patients has been published in an influential Sunday newspaper.
As part of the work of PHocus2021, representatives from PHA UK are attending the major political party conferences to raise awareness of issues surrounding pulmonary hypertension.
The strategic aims of PHocus2021 have been agreed following meetings with patients and caregivers involved in the project.